Phoenix Tears Update

Wow has it really been 46 days since I started taking Phoenix Tears & CBD tincture twice daily…..time has just flown by.

Ok so like I have mentioned in my other updates, I’m still not getting physically ill when I’m stressed.

I spent an entire week outside of Nelson, B.C house sitting for my Dad while is fighting forest fires & my Uncles were on a fishing trip. Thankfully my younger sister came on the trip with me so we spit the chores in half. We had to take care of chickens & a bunch of small gardens twice a day. On top of that we had to walk from my Dad/Uncles place to the hotel we were staying in, which is about a block & a half away.

I had really bad anxiety the entire trip, it didn’t feel right & I just wanted to be back home with my fiance. I realized that I have been like that since I was a little girl, I would have a hard time at sleepovers or ask to get picked up because I wanted to be back at home.

Anyways, so despite that week of bad anxiety & some stresses because it was a bit of a gong show with instructions, I was able to get through it with minimal issues. There were only two mornings where I wasn’t able to get up in the morning to do chores but I always was able to bounce back & able to eat food & do the chores evening.

I’m just super excited that stress is no longer making me physically ill & limiting what I can do.

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Endometriosis – The Standard of Care is Not Sufficient

By: EndoWest Arrington

THE STANDARD OF CARE IS NOT SUFFICIENT!!

There has been a lot of “chatter” on Endometriosis social media pages lately about hormone therapy to prevent endometriosis from progressing as well as “chatter” regarding hysterectomy to “treat” endometriosis.

Given that most patients only know what they are told by their gynecologist, I’d like to break down the one publication that general gynecologists refer to to “educate themselves.”

The ACOG Practice Bulletin #114 on Endometriosis, covers a wide variety of topics in a “politically correct” way. Most of the studies they use to make their observations focus only on management of endometriosis related pain (for hormone therapies), and reoperation rates and pain for surgical treatment.

A short reiteration on hormone therapy. Any medical therapy for Endometriosis is meant to help with pain. This is called “palliation.” The purpose of hormone therapies is the same as that for pain medications and anti-inflammatory medications. There are no data to suggest that medications prevent progression of endometriosis. As endometriosis surgeons, we often see patients who have had ok pain control on medication, yet present with advanced, stage 4, fertility stealing endometriosis. This clarification is often overlooked by gynecologists as they read though the ACOG Bulletin. They teach patients that GNRH agonist therapy after incomplete endometriosis surgery will “get rid of” or “kill off” any remaining disease. This is simply NOT TRUE!

Gynecologists also often quote hysterectomy with removal of the ovaries to be “definitive treatment for endometriosis. The general understanding of a “definitive” treatment is that it completely takes care of the problem so it does not keep troubling the patient. This attitude is severely misleading and untrue.

The ACOG Bulletin also has a section on this that is overlooked or misunderstood. They quote the reoperation rate of around 15% after hysterectomy and castration for endometriosis patients. Interestingly they also state that it is unclear in the studies if the endometriosis was removed at the time of hysterectomy. In studies where Endometriosis is completely removed at the time of hysterectomy, there is no benefit to castration or removal of both ovaries if they are unaffected by endo. (This part is correct).

Interestingly, the rate of reoperation after hysterectomy and castration of 15%, is close to the accepted percentage of patients with deeply infiltrating endometriosis or D.I.E.

Hysterectomy and removal of ovaries DOES NOT TREAT Endometriosis unless there is endo growing on those organs. If hysterectomy is performed and the endometriosis left behind, this is considered incomplete surgery. In fact this practice does go against ACOG recommendations in the bulletin. The bulletin states that hysterectomy can be helpful at the time of surgical treatment for endometriosis. In other words, the removal of endometriosis should be the primary focus of the surgery and hysterectomy may be considered additionally for uterine related pain symptoms. The most common of these would be endometriosis of the uterus or cervix or adenomyosis.

General gynecologists have taken the Bulletin statement to mean that hysterectomy alone is “definitive” treatment for endometriosis. His harms patients in a few ways. First they continue in pain that severely affects their lives. On top of this, they are often told that the pain cannot be from endometriosis as they have had a hysterectomy. This teaching continues the cycle of patients believing they are “crazy” or that there is no hope. Other therapies such as pelvic physical therapy or psychiatric, or pain management referrals are then pushed on the patient so the gynecologist can “wash his/her hands” of the problem. Please don’t get me wrong, those other treatments do have a role in the appropriate patient. Especially physical therapy. But, as long as there is Endometriosis that is provoking a pain response, I believe that the benefit from pelvic PT has limited benefit. This attitude also puts patients at risk of opioid dependency.

Gynecologists are terribly “mis-educated” about endometriosis treatment. This largely lies on the inadequate surgical education we receive. General gynecologists simply do not leave residency with the skill to identify and remove Endometriosis in all its presentations and locations. When met with disease that they can’t treat, they run to the only “treatment” they have been trained to provide, hysterectomy and castration. Most of them have not reviewed any literature or received any education in Endometriosis management since leaving residency. Their knowledge is old and based on studies that used incomplete surgery as the benchmark for comparison.

Few general gynecologist “want” to treat patients with endo, yet they also do not want to “lose their patient.” Whether it is outdated education, worry about losing patients, or pride, many gynecologists simply will not admit when Endometriosis is beyond their capability of treating.

This disease is, by far, the most difficult surgical treatment we see in benign gynecology. This is often worse disease and more difficult surgery than gynecologic cancer. It takes tremendous time and experience to be able to recognize all forms of disease and not “freak out” when confronted with stage 4 endo with frozen pelvis, obliterated culdesac, and DIE.

It truly is time that we must recognize that the “standard of care” for endometriosis is not sufficient. There is a proven better way to treat this disease. As patients better educate themselves and gynecologists learn about the disease and stop their selective bias reading of literature, we may begin to speed the progress.

My thoughts right now

Ok so it’s 1:03pm on July 20th 2017.

My world is spinning as I process the fact that Chester Bennington from Linkin Park took his own life……so many people, including me, have been able to get through hell because of Linkin Park.

Let’s take a look at Linkin Park’s newest song:

Heavy

I don’t like my mind right now
Stacking up problems that are so unnecessary
Wish that I could slow things down
I wanna let go but there’s comfort in the panic
And I drive myself crazy
Thinking everything’s about me
Yeah, I drive myself crazy
‘Cause I can’t escape the gravity

I’m holding on
Why is everything so heavy?
Holding on
So much more than I can carry
I keep dragging around what’s bringing me down
If I just let go, I’d be set free
Holding on
Why is everything so heavy?

(Holding, holding)
(Holding, holding)
(Holding, holding)
(Holding, holding)
(Holding, holding)
(Holding, holding)
(Holding, holding)
(Holding, holding)

You say that I’m paranoid
But I’m pretty sure the world is out to get me
It’s not like I made the choice
To let my mind stay so fucking messy
I know I’m not the center of the universe
But you keep spinning ’round me just the same
I know I’m not the center of the universe
But you keep spinning ’round me just the same

I’m holding on
Why is everything so heavy?
Holding on
So much more than I can carry
I keep dragging around what’s bringing me down
If I just let go, I’d be set free
Holding on
Why is everything so heavy?

(Holding, holding)
(Holding, holding)
(Holding, holding)
(Holding, holding)

Holding on (Holding, holding)
Holding on (Holding, holding)

I know I’m not the center of the universe
But you keep spinning ’round me just the same
I know I’m not the center of the universe
But you keep spinning ’round me just the same
And I drive myself crazy
Thinking everything’s about me

Holding on
Why is everything so heavy?
Holding on
So much more than I can carry
I keep dragging around what’s bringing me down
If I just let go, I’d be set free
Holding on
Why is everything so heavy?
Why is everything so heavy?

Things were too heavy for Chester & he was unable to let go of what was plaguing his mind.

I know this is going to trigger a lot of people but we need to be strong. You are not alone in what you are feeling. I ask that you please reach out to someone, anyone, if you are feeling suicidal or just need to talk to someone. Across North America you can call 1-800-273-8255

Please be safe as you morn the loss, alcohol & drugs will only temporarily take away the pain. I know many feel like counseling is a sign of weakness but it’s the opposite. It takes great strength to face your problems/past head on & learn how to cope with it all.

 

Small Rant

Recently saw an article that advocated drinking wine for a long life & now this one about coffee. OK, moderation folks is the key here.
 
Alcohol & caffeine are more addictive than cannabis, more toxic than cannabis & are bigger gateway drugs than cannabis yet they are legal. No one asks for ID when someone orders coffee, it’s not even a requirement.
 
Hollywood promotes drinking whenever we have feelings,
feel happy = drink,
feel mad = drink,
feel sad = drink
 
NO wonder there are so many addicts.

Update: Trying Phoenix Tears

Another update:

Update on my phoenix tears experience:
(For the record, I’ve been doing this for 10 days now)

So I’ve been sticking on top of the phoenix tears (I have 1 CBD & 1 THC) & CBD tincture. Still sleeping so much better than I had been. My main reason for this update is for what happened last night & today. I was in a super stressful situation last night & was dreading today because I knew I was going to be throwing up lots & having diarrhea.

Well to my shock & delight, today feels like a normal day. I haven’t thrown up at all today & had a normal bowel movement. I wish I could explain how shocked I am because this is not normal at all. With how stressed I was last night, it should have taken it’s toll on my body but it hasn’t. I’m pretty sure that the only reason I am ok today is because of taking the phoenix tears & CBD tincture. I am so excited!! Yes I try to do things that limit my stress but sometimes life happens & it’s unavoidable. I’ve never known if there was anything I could do after the stress even to limit its toll on my body, normal hoots aren’t enough.

It’s still early into this experiment but I am super happy with this result & hope that this is how it is from now on if I get super stressed.

Endometriosis rant

Ok I need to rant  bit here. Another EndoSister has committed suicide in hopes of raising awareness for Endometriosis https://www.instagram.com/p/BVpl1udHJqu/

I can’t even begin to tell you how upsetting this is & I don’t even know the woman. This could be any one of us, & by us I mean 176+ million women globally. We’ve all felt defeated by this illness, angry that we’re being ignored & silenced because….what female reproductive organs are involved? Cause really that’s the only thing that makes sense.

Currently there are about 3 million women living with breast cancer in the U.S but 6.3 million women & girls living with Endometriosis. That’s 1-in 10 women. Yet there is hardly any information on Endometriosis, hardly anyone knows about the disease & the only treatment options are band-aids at best.

As it takes 7-11yrs for diagnoses of Endometriosis, the fact that someone women are misdiagnosed with something else & that some women don’t have any symptoms, there could be more than 176+Million globally with Endometriosis.

Now I feel like if this were happening to men, this would be a whole different story. People would know about the disease & there would be better treatment options. Hell even if this were something that cattle suffered with, there would be more progress. There is no way they wouldn’t investigate something that makes 5-10 cows have fertility issues.

Over in Australia there is a study being done on how Endometriosis effects the sex life of men. Seriously!?! Is that the only way we can get progress, show men how it effects them?

Birthday wishes

A while back I asked for your help in wishing my fiance a happy 34th birthday on May 11th. I hadn’t been sure how to go about doing this so I can receive your videos & I’m new to this element of tech so I have gone the simplest route.

 

I have created a youtube account & made a Brand channel. I can allow people to upload videos to that channel. So, if you have decided that you want to help me out, let me know your youtube account & I will add you to the channel so you can upload the video.

 

Thank you in advance for your help, this will be a neat birthday surprise for sure 🙂 Here is the original message with the details on what to say 🙂 Thank you again!!!!

I need your help

My fiance turns 34 on May 11 this year. I have decided as part of his gift, I want to collect birthday wishes for him from around the world. I can’t work due to having multiple illnesses, so I have to get creative for gifts.

My fiance is my world, we’ve been together for 6 years & he has stayed by my side despite all my health issues. He loves the sound of my laugh so he makes me laugh so much, especially when he knows I am having a hard day. He takes great care of me, even doing small things like making sure when I go to nap, there are two blankets on the bed waiting for me. All my friends stopped coming around when I got sick, each canceled event was a nail in the coffin of our friendship. It’s been very isolating but my fiance has stood by me through it all & helped me get through it all.

I’m still figuring out where to have all the videos sent so he can watch them. (If you have any ideas, please let me know)

 

If you would like to take part, thank you so much in advance! In your video, please include what country you live in. His name is Cory. (Sample message: Happy 34th Birthday Cory, from Canada)